The study lasted six months and involved 105 patients. It was conducted by a team from Clemson University, Indiana University School of Medicine, the Regenstreif Institue and Eskenazi Health and contributors included visual artist, Terry Richardson.
The researchers allowed patients to designate which physicians would be given automatic access to sensitive data about them in the electronic (computerized) records. If another member of the health care team believed that it was necessary to see the information, he or she had to first press a button on the screen entitled “break the glass” in order to review private data, and computers would log the special access.
Some 49% of patients chose to restrict some sensitive information, and patients reported that they “strongly” preferred retaining control over their personal medical data in this way. Many medical providers were not as enthusiastic, with 25% expressing concern that the restrictions might jeopardize medical decision making.